Saturday, March 28, 2009

Baby Update

I just thought I'd update the blog real quick with the current status of Knox since I've had a few people ask since I haven't posted much about him. I wish I was posting fun pictures of our week together but we've again had a few set backs. We got to take Knox home from the NICU last Sunday and had 4 great days with him at home. His lungs were all healed up and we got a healthy baby. On Thursday I was unfortunate enough to find a bloody diaper. After speaking with our pediatrician and watching it for a few hours, we came to Primary Children's. We learned that Knox has a bacterial disease in his colon which is called NEC. It is completely unrelated to the lung disease he had previously and as with before, they say it's extremely rare and usually only seen in premie babies. We're now up at Primary Children's and it's looking like we'll be here for awhile. Our poor little baby has been through so much, it's been a terrible way to spend the first month of life. We didn't think it could get worse then the pneuomthorax in his lungs, but we've learned we were wrong. It is breaking our hearts to see our little man go through so much but he is a strong and patient little spirit so we're confident once again that he'll pull through. Fortunately we caught it quickly and hopefully he'll respond just as rapidly to treatment. Thanks to everyone for their concern and hopefully soon we can have some good news to post about.

11 comments:

Katy said...

Suzy I'm so sorry! I can't believe all that Knox and you guys have been going through. I hope he pulls through quickly again. Please let us know if there is anything we can do. You are in our prayers.

Jill said...

WE love you guys. Hope Knox is okay! YOu are in our prayers. I have wanted to come visit, but want to make sure it is a good time. Thanks for the update!

Candice said...

Suzy, sorry about your rough month. My sweet little niece went through such a rough patch too. It is a horrible roller coaster. Stay possitive. We know we will never be given more than we can handle. Some times it just proves to us how string we are!!

Candice said...

sorry typo: strong is what I meant

Lindsey S. said...

I am so sorry you guys! Julie gave us the update and my heart sank! PLEASE let us know if you need anything!

P.S. my email is lindseyhswan@gmail.com

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Suz said...

Suz-
Poor little man. I am so sorry that he has to go through all of this stuff. Your a good little mommy. Hang in there. If you need anything let me know. He will be in my prayers.

Mandy said...

I'm so sorry to hear about your set back. I hope that he gets over all of this soon and that you can finally take him home for good! We will keep all of you in our prayers.

Natalie said...

Oh Gosh Suzy, Im sorry. You guys must be made of steel! Be strong and have faith that it will be ok. Please let me know if there's anything i can do. Love natalie

Kristin and Bridger said...

Poor little Knox...Hang in there! We love you guys so much and you are continually in our prayers. We're here if you need ANYTHING!!

Holly said...

I'm so sorry Suzy, that's a lot for you guys and your little babe to go through! Hope he recovers fast so you can have him back home soon, hang in there!

stacey said...

Suzy i'm so so sorry you guys have to deal with so much scary stuff! You must have one strong little boy to keep fightin all this medical stuff! We will keep you all in our prayers that he recovers fast and you get to bring him home healthy and happy, hang in there girl! Oh ps my email address is staceygirl630@hotmail.com